Genetic Data Governance Crisis
Policy frameworks to protect privacy and prevent discrimination
This research proposes comprehensive policy solutions to address the growing risks associated with widespread genetic data collection and use.
- Privacy vulnerabilities in genetic datasets threaten individual rights as data collection expands
- Discrimination risks emerge when genetic information influences decisions in insurance, employment, and other domains
- Regulatory gaps exist between current frameworks and rapidly evolving genetic technologies
- Multi-stakeholder approach needed to balance innovation with ethical safeguards
For the medical sector, these findings highlight the urgent need to establish governance structures that protect patient privacy while enabling beneficial medical research and clinical applications of genetic data.