This research proposes comprehensive policy recommendations to address the growing risks associated with widespread genetic data collection.

• Privacy threats from expanding genetic datasets require immediate governance solutions
• Discrimination risks exist in healthcare, insurance, and employment contexts
• Four policy pillars identified to balance innovation with protection of individual rights
• Coordinated approach needed across public and private sectors

For the medical sector, these recommendations provide a crucial framework to ensure genetic data can continue driving health advancements while protecting patient privacy and preventing harmful discrimination practices.

Genetic Data Governance in Crisis: Policy Recommendations for Safeguarding Privacy and Preventing Discrimination